Szilvia Hübel

Foto Sylvia Hübel

Campus: Hoger Instituut voor Gezinswetenschappen
Adres: Huart Hamoirlaan 1366, 1030 Brussel
Lokaal: HIG
Telefoon: 02-240 68 40
Studiegebied: Sociaal-Agogisch Werk


Prenatale screening en diagnostiek, een morele imperatief ?



Aantal : 9
Prenatale screening en diagnostiek, een morele verplichting?
Rigo, Adelheid ; Hübel, Sylvia ; Emmery, Kathleen ; Stuy, Johan
Vlaamse Organisatie Van Vroedvrouwen
Tijdschrift voor Vroedvrouwen; 2015; Vol. 21; iss. 1; pp. 5 - 11
Parental autonomy and responsibility in the context of prenatal diagnosis. Views and attitudes of Belgian healthcare professionals and families
Hübel, Sylvia ; Rigo, Adelheid ; Emmery, Kathleen ; Van Crombrugge, Hans
Parental Responsibility in the Context of Neuroscience and Genetics; 2015
Parental autonomy and choice in the context of prenatal diagnosis. Views and attitudes of healthcare professionals and prospective parents
Hübel, Sylvia ; Rigo, Adelheid ; Emmery, Kathleen
International Association of Bioethics
Inspire the future to move the world; 2014; pp. 114 -
Background: With the expansion of prenatal diagnostic options, we have been challenged to redefine our understanding of parental autonomy and responsibility. Parental choices are publicly analyzed,approved or disapproved; some argue that parents have the moral obligation to enhance the genetic makeup of their children, others consider this goes beyond normal parental duties. The public and scholarly attention goes to the social anxiety around the limits of procreative freedom and the increasing tension between individual rights and community interests. Objectives: Our study focused on the experiences of healthcare professionals (HCPs) and families regarding current counseling practices. On the one hand our objective was to get an insight in HCPs\’ views on parental autonomy and responsibility and to see whether/ to what extent they influence parental choice in concrete counseling situations; on the other hand we explored parents’ decision-making, to see if they experience limitations in their choices and to assess their needs. Methods: In-depth, semi-structured, face-to-face interviews (n=41) were conducted with HCPs; a grounded theory approach was used to analyze the data. Besides 260 questionnaires were completed online by parents with a recent experience of prenatal diagnosis; we used Qualtrics software for handling the questionnaire. Results: HCPs expressed a strong striving for non-directivity and commitment to respect parental autonomy and choice. However, they also formulated dilemmatic situations where they experienced tension between this ideal and the challenges of the practice. The great majority of parents were satisfied with counseling, some desired more emotional support and active implication of HCPs in their decision-making. Both groups suggested concrete ways of enhancing decision-making support. Conclusion: Given that prenatal diagnostic technologies are rapidly evolving, ongoing academic and societal debate are critical. HCPs’ and parents’ views represent a good starting point in this regard
Dossier: Prenatale diagnostiek en screening
Rigo, Adelheid ; Hübel, Sylvia ; Emmery, Kathleen
Tripliek; 2014; Vol. 49; pp. 15 - 16
Prenatale tests, vrijwillig of niet
Van den Broeck, Stefanie ; Hübel, Sylvia ; Rigo, Adelheid
Ministerie van de Vlaamse Gemeenschap. Administratie Gezin en maatschappelijk welzijn
Weliswaar: welzijns- en gezondheidsmagazine voor Vlaanderen.; 2014
Parental responsibility in the context of prenatal diagnosis. Views and attitudes of Belgian healthcare professionals and families
Hübel, Sylvia ; Rigo, Adelheid ; Van Crombrugge, Hans
Maastricht University Faculty of Health, Medicine and Life Sciences
The lived experience of responsibility in prenatal choices. Between personal discernment and normative frameworks
Hübel, Sylvia
Prenatale screening en diagnostiek: een morele imperatief?
Hübel, Sylvia ; Rigo, Adelheid
Hoger Instituut voor Gezinswetenschappen
Present and Future Challenges of Motherhood; Slaloming between road signs and traffic cones
Hübel, Sylvia
Thinking ahead, 11th World Congress of Bioethics; 2012; pp. 129 - 129
A new reproductive and genetic technologies have opened up a whole array of passages to motherhood which were unimaginable three decades ago. They have provided women with an increased range of options in determining when/ how/under which circumstances they wish to pursue motherhood, allowing them to cryopreserve their eggs, choose a surrogate across continents or have a baby to save the already existing one. The development of diagnostic techniques gave them the ability to control the health of their babies, ensuring they were disease-free or choose deliberately their disability. An embarrassment of riches at the buffet table of motherhood - as popular discourses often illustrate it. However there is less and less place for contingencies in one’s pregnancy and a growing societal pressure to design responsibly every step of it. We are witnessing a shift in the cultural views on women’s responsibility and the institutions which are supposed to assign them. Maternal actions and choices are publicly analyzed, approved or disapproved, judged or even vilified. The public and scholarly attention goes to the social anxiety around the limits of reproductive freedom, dealing mostly with issues of eugenics, health care system or social justice. While there is much concern about the ethics of these unprecedented options, there has been strikingly little discussion on their straining effect on motherhood experience. The passage to motherhood is gradually becoming a multiple choice test, packed with ethical dilemmas and extremely difficult deliberations. We would like to draw on the increasing ethical complexity of motherhood, tackling some of the new aspects of responsibility, looking at the ways how future mothers relate to or take distance from them, negotiating or resisting dominant social norms and ideas. Inevitable choices are further multiplying at a staggering rate and the momentum of technological development is considerable for motherhood experience. Women already have to take into account medical indications, healthcare policy and legislation, social desirability and harmonize all these with their conscience, intuitions and beliefs. Further developments might change the ethical landscape of motherhood even more drastically in the near future. Are we heading towards a future where ethical decisions will scare women away from motherhood? Who would endow them with a moral compass in order to successfully slalom between the traffic cones on the bumpy roads of motherhood?
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